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epilepsy Resources

You may have Epilepsy, but it does not need to have you.
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Epilepsy

Epilepsy is a neurological disorder marked by sudden recurrent episodes of sensory disturbance, loss of consciousness, or convulsions, associated with abnormal electrical activity in the brain.

Facts About Epilepsy
and Seizures 

  • 1 in 10 individuals will have a seizure in their life span - epilepsy related or not.

  • 1 in 26 individuals will develop epilepsy in their life.

  • 110,000 individuals in our region are currently battling epilepsy. 

  • 3.4 million people in the United States battle with epilepsy.

  • 1/3 of the individuals who live with epilepsy, battle with uncontrollable seizures because no treatment works for them. 

  • The cause for 6 out of 10 individuals with epilepsy is unknown. 

  • Over 50,000 people each year die from SUDEP (Sudden, unexpected death in epilepsy). 

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Types Of Seizures

Seizures usually fall under two groups: Generalized seizures and Partial seizures.

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  • Generalized seizures can be tonic-clonic, myoclonic, atonic, or absent. These seizures begin with a widespread electrical discharge that involved both sides of the brain at once.

  • Partial seizures can be complex or simple. These seizures start with an electrical discharge in one area of the brain.​

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Other seizures can be known as status-epilepticus, non-epileptic seizures, or infantile spasms. 

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For more information regarding each type of  seizure, visit Epilepsy Services of New Jersey

Treatment Options

There are many treatment options for those who battle with epilepsy such as medications, diets, and surgeries. There is no cure for epilepsy, yet. For more information, regarding treatment options, visit our friends at the Epilepsy Services of New Jersey.

Medical References

Children Medical References

Click the images to visit our medical references for neurologists in the Tri-State area.

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Nemours, DuPont Hospital, Wilmington, Delaware.

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Children's Hospital of Philadelphia, Philadelphia, Pennsylvania. 

Current Epilepsy Research Trials and Studies
Fearless Movement Is Involved With

Clinical Trials

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  • Treatment can only advance with clinical trials. Clinical trials test to find the best possible outcome for treating an individual when it comes to epilepsy. These trials develop better ways of treatment both efficient for the patient and illness/disability they're battling. 

  • If your current treatment is not controlling your seizures and you would like to be a part of a clinical trial and see if you are a candidate for one in your area please visit: https://clinicaltrials.gov/

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Right now, Epilepsy research and trial funding are at an all-time low. Epilepsy is 6 times more prevalent than Parkinson's disease but receives the same amount of funding for research. 

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  • If you would like to donate to our research efforts, please click

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Current Epilepsy Research Studies/Clinical Trials

Epilepsy Birth Control Registry

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Harvard and Columbia University are offering a survey to conduct information regarding increasing the safety of effectiveness of birth control for women living with epilepsy. 

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Their goal is to develop guidelines for the selection of safe and effective birth control methods and to make sure the best forms of birth control become available to all women with epilepsy in all communities. 

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If you would like to be a part of this study please visit: Epilepsy Birth Control Registry

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