You may have Epilepsy, but it does not need to have you.
Epilepsy is a neurological disorder marked by sudden recurrent episodes of sensory disturbance, loss of consciousness, or convulsions, associated with abnormal electrical activity in the brain.
Types of seizures
Seizures usually fall under two groups:
Generalized seizures and Partial seizures.
Generalized seizures can be tonic-clonic, myoclonic, atonic or absence.These seizures begin with a widespread electrical discharge that involved both sides of the brain at once.
Partial seizures can be complex or simple.These seizures start with an electrical discharge in one area of the brain.
Other seizures can be known as status-epilepticus, non-epileptic seizures or infantile spasms.
For more information regarding each type of seizure, visit Epilepsy Services of New Jersey
Facts about Epilepsy and seizures
1 in 10 individuals will have a seizure in their life span - epilepsy related or not.
1 in 26 individuals will develop epilepsy in their life.
110,000 individuals in our region are currently battling epilepsy.
3.4 million people in the United Sates battle with epilepsy.
1/3 of the individuals who live with epilepsy, battle with uncontrollable seizures because no treatment works for them.
The cause for 6 out 10 individuals with epilepsy is unknown.
Over 50,000 people each year die from SUDEP (Sudden, unexpected death in epilepsy).
There are many treatment options for those who battle with epilepsy such as medications, diets and surgeries. There is no cure for epilepsy, yet. For more information, regarding treatment options, visit our friends at the Epilepsy Services of New Jersey.
Children Medical References
Click the images to visit our medical references for neurologists in the Tri-State area.
Nemours, DuPont Hospital, Wilmington, Delaware.
Children's Hospital of Philadelphia, Philadelphia, Pennsylvania.
CURRENT Epilepsy Research trials and studies FEARLESS MOVEMENT IS INVOLVED WITH
Fearless Movement proudly helps fund Clayton's Hope Organizations' Epilepsy Research efforts
This particular study is on cannabis use when it comes to patients who have intractable epilepsy in the PICU setting.
Diagnosis such as Dravet and LGS have been approved due to studies such as this for children with an onset of intractable Epilepsy. It is our goal with donating our research funds to Clayton’s Hope, to help foster seizure free lives one study at a time!
Read more about this study by clicking here.
Treatment can only advance with clinical trials. Clinical trials test to find the best possible outcome for treating an individual when it comes to epilepsy. These trials develop better ways of treatment both efficient for the patient and illness/disability they're battling.
If your current treatment is not controlling your seizures and you would like to be a part of a clinical trial and see if you are a candidate for one in your area please visit: https://clinicaltrials.gov/
Right now, Epilepsy research and trials funding is at an all time low. Epilepsy is 6 times more prevalent than Parkinson's disease but receives the same amount of funding for research.
If you would like to donate towards our research efforts, please click
Current Epilepsy Research studies/Clinical Trials
Epilepsy Birth Control Registry
Harvard and Columbia University is offering a survey to conduct information regarding increasing the safety of effectiveness of birth control for women living with epilepsy.
Their goal is to develop guidelines for the selection of safe and effective birth control methods and to make sure the best forms of birth control become available to all women with epilepsy in all communities.
If you would like to be a part of this study please visit: Epilepsy Birth Control Registry